This is a very special day for my family a very special day for Lyla. I want to start off by thanking everyone for coming and supporting our beautiful daughter today and supporting our family since her birth. The love that we have received from all of u has been extremely overwhelming. The phone calls, the visits, the emails, texts, cards, gifts, dinners, to name a few has helped my family tremendously. Just knowing that all of you stood by us and wanted to be there for us has touched our hearts in a way that is indescribable. According to the Center for Disease Control and Prevention.....1 in 33 children born in the United States will be born with a birth defect. There are over 4,000 birth defects and it just so happened we were one of the many families effected by a birth defect ours being Achondroplasia(the most common form of dwarfism). Some people might call this fate. Eddie and I call this luck. We feel that we are the luckiest parents in the world to have been given such a special child. When something like this happens to you you start to reevaluate your life. Lyla is not even 4 months old and already she has given us so much. The first thing she has taught me is strength. Second she has taught me to appreciate life. She has brought my family closer together a bond I thought was already tight. She has introduced us to a world of very special people. People that we never would've had the privilege of knowing if she wasn't born with this condition.But most of all she has given our daughter Emma the gift of a sister. And anyone who has a sister a sister like I do knows there is nothing like it. Love u Michelle . Our Emma loves her baby sister and she has an immediate best friend.
Right now I am going to read to you a poem that was given to us by other parents with children who have Achondroplasia and hopefully it will give you a better perspective on what it's like to raise a special child.
Welcome to Holland
I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......
When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.
After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."
"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."
But there's been a change in the flight plan. They've landed in Holland and there you must stay.
The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.
So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.
It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.
And... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.
Eddie and I are in holland and we think it's awesome!
Now I want to say a toast to 3 amazing people. I would like to pay special recognition to my father-in-law Edward Granshaw because he decided to watch his special granddaughter so Eddie and I could go back to work knowing she was in good hands. I would like to say something to my wonderful husband Eddie. Everyday I wake up and pinch myself because I can't believe how beautiful our life is. It is a dream come true and I thank you for being the supportive husband you are and the most incredible father to our daughters. Next to Emma Grace. Emma on the day you were born mommy and daddy's life began. We love you so much and Lastly to our sweet Lyla. You have opened up mommy and daddy's hearts to a world full of unconditional love. Thank you so much. We love you. Please continue to pray for our Lyla. We love you guys. God Bless Lyla Rose!
To my beautiful sister,
ReplyDeleteAs you know, my entire life I have looked up to you; Your strength, wisdom, and guidance have had a huge impact on the woman I am today. Just when I thought that you couldn't show me anymore about life, love, and true sistership..I was wrong. You are my inspiration. You are the most amazing person that I have ever known. You're such a wonderful wife, mother, & sister. I'm so proud of you and everything you've been doing for Lyla. She will know how lucky she is to have you as her mother (and me as an Aunt, because NO ONE will ever mess with my Lyla!) I've wanted to be an Aunt since the day you said "I do" to the best brother-in-law in the world. Bruce, Katie, You, Eddie, Emma, & Lyla are my rocks. Without all of you, I am nothing. I love you with all of my heart. Katie, Emma, & Lyla are my most beautiful girls. I have there pictures everywhere..my binders, my walls, my office..so I can look at them all day..I have a love for them that is so deep, so real..it can't ever be touched. I'm so proud of your blog!!!! I love you sister!!! Love always sister!!
God Bless Lyla! One of the cutest and best babies known to man!!!!!!!!!!!!!!!!!!!!!!!!!!!!!<3<3<3<3<3
ReplyDeleteA trip to Holland. What a wonderful way of thinking of things. God bless you and your family.
ReplyDeleteThis is a lovely post and I agree with anonymous above, that's a beautiful way to think of things and so spot on. I wish you guys all the luck in the world xx
ReplyDeletegreat things happen when god mixes with man
ReplyDeleteI have no words to express my feelings after i accidently bumped into your blog.i am a new mom n my child was born with a large nevus n ur thoughts have inspired me so much. God bless ur family n especially lyla...
ReplyDeleteSuch a lovely post. May God shower you with the best blessings.
ReplyDeleteWhen our precious daughter was born (also with achondroplasia) in 2001, I too was given the Holland poem. It was a light of love that was a positive turning point during an emotional time in our lives. I did grieve for Italy briefly, but have been in love with Holland from the first moment. Today my daughter is a constant source of inspiration to not only me, but many others. I look forward to reading more of your blog.
ReplyDeleteThis is so beautiful, it actually brought tears to my eyes. I think you've got a wonderful outlook on life and I wish you and your family all the very best. Thank you for sharing such positivity with the world.
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