Monday, March 28, 2011

LPA Regional Islanders Chapter

This was the best weekend ever! We had such an amazing time. We got to see so many people and meet so many more families. Everyone wanted to meet Lyla because she is the newest member of the LPA. As always we were welcomed with open arms. The regional was a 3 day event starting on Friday, March 25. We got to the hotel around 4 pm and we all got ready. Here are several pics from that wonderful night!


Me and my 2 girls!


Emma loves getting her face painted







Lyla trying to go to sleep


We met our new friend Lila.....Lyla and Lila!

Jon...the first Little Person we met. He came to our house. He is my Buddy! Jon is the best dancer I know!


My gorgeous hubby and beautiful daughter....twins!!!

Me and my Lyla bean!

They had a giant candy cart with all types of goodies! Emma grabbed this delicious apple!

Jess and Lyla


The four of us!!

Me and my girl

The three of us!

At the party was a company who did airbrushing. I had this T-Shirt made. Everyone loved it! By the end of the weekend people took my slogan! It was the phrase of the weekend.


The morning of Saturday, March 25th we were tired but ready to start a very long and fun-filled day. We dropped Emma off at the "Kid Room" and off we went to workshops. At 12:00 we picked her up for a photo shoot appointment for a website Jim and Darlene Korpai are putting together to help educate the public on dwarfism. But Emma's face was painted so we left her in the kid room and Eddie, Lyla and me took the pics. Once I have them I will post them online. We ended up going back at 4:15 to take more photos of the 4 of us! It was great and we are so happy we will be a part of the website! We can't wait for the finished product!


Emma BEFORE face painting!


My sweet diva girl


Emma AFTER face painting LOL!


After the photo shoot we went and got Emma and we went out to lunch. A place called "Houstons". Then we took the girls to the Nassau Children's Museum. Emma had a lot of fun running around with her dad!









I was eating Twizzlers and decided to give one to Lyla. She loved it! LOL



We all showered and got ready for the evening! I didn't take that many photos because there was a really cool photo booth there and we kept going into that and taking pics. Here are a few from the Banquet dinner.


Me and my Buddy Jon. When he came to my house and we first met, I told him he was so handsome! All the girls love him!

Don't know if anyone watches the show..."Cake Boss". Well this is a cake he made for our event! Our chapter ROCKS!!!!

My Aunt Weezie holding Lyla!

We are so exhausted here. Lyla had enough!

A magician from "America's Got Talent" performed!

There were so many people! What a great turnout!

The end to a FABULOUS weekend! We left that night and got home around 11:00 pm. We were all exhausted! We can't wait for more regional parties! Our chapter really knows how to host a party! Mike and Karen did an amazing job organizing such a spectacular event. Emma keeps talking about the weekend and she keeps saying she wants to go back to the hotel! We all want to go back!

Monday, March 21, 2011

Lyla is 6 months old!

Our beautiful girl is 6 months old today! At this point she tries to roll over but cannot yet. She still tries to lift her head but just for a few seconds then she puts it right back down. Hopefully soon she will be able to do these developmental milestones. I am not worried.
We will be going to Dupont Children's Hospital the first week in April to see Dr. Bober and Dr. Mackenzie. We are excited to see what they will say about our Lyla and anxious to see if she will need further testing or possible surgeries. We will see when we get there.
The best news we got today was that our insurance company will be paying Lyla's medical bills. We are estatic! Before today they only were willing to pay for 80% of her medical bills. Then we fought to get her doctors in-network and the insurance company agreed to pay 100%. It worked!!! YEAH!!!
Here a couple of updated pics of my gorgeous girls!!!!


Sisters!!!

Emma loves her sissy!


My beauty!